The Waiting Game

“Waiting for the fish to bite or waiting for wind to fly a kite. Or waiting around for Friday night or waiting perhaps for their Uncle Jake or a pot to boil or a better break or a string of pearls or a pair of pants or a wig with curls or another chance.”

– Dr Seuss

 

“When, as a woman, sister and mother, you hear about ‘waiting time‘, I automatically think about waiting for something to happen at its own pace and time. This ‘something’ can be anything: from waiting for a load of washing to be done, waiting for a cake to bake, waiting in the supermarket check-out queue – or even just waiting for your children to finish a simple task!

Breast Cancer - waiting time - Advocates for Breast Cancer blog

The specific sort of ‘waiting time’ I want to unpack is this one: right from the moment you discover a lump in your breast, to the time it takes for you to get to your doctor for an examination and obtain an absolute diagnosis. As a woman, I know we tend to bury our own importance in the background, and will even dissolve into a kind of denial about the lump we felt. And the waiting time between the actual identification of the lump to the time it takes for an appointment with your doctor excrutiatingly increases the anxiety experienced in that time of waiting.

As a medical professional, I am acutely aware that the waiting time to see a general practitioner in the private system can range from a day to three days. The waiting time for breast-imaging may be even be as long as several days. In some of our South African provinces, the public sector’s mammographic resources are alarmingly, frustratingly and unfairly scarce – whilst some of our neighboring countries suffer even more drastically: there is only one mammography unit in Malawi! Their waiting time for breast-imaging? Months…

 

Another ‘waiting time’ is that endured in the doctor’s consulting rooms. In reality, one should have a ‘waiting clip-card’ which gets clipped every time someone says: ‘Please wait here for a while…’

But perhaps the most angst-filled ‘waiting time’ is between having had the mammogram and biopsy and are now waiting to hear the results from your trusted doctor. Time stands still; your heart lurches forward into a million what-ifs. This is the time when you need to have a strong, relentlessly compassionate shoulder to cry on in case the results are not what you want to hear.

Nobody likes to wait for anything – even if it is something pleasant. I have an active and very vivid imagination- and waiting gives my mind too much time to imagine all sorts of crazy things and agonize over the worst possible eventualities. PLEASE: do not do this! Wait only for a day or two, then take action and — be hopeful! Because it is inevitable you will have to wait, choose to DO something while you wait! Another action you can take (which will empower you and others) is to take up the critical cause of breast cancer advocacytell, tell, tell people about what you have experienced physically, emotionally and medically so that everyone will know just how incredibly widespread and common breast cancer is becoming, and how crucial it is that knowledge is power and early prevention is KEY! Please remember there is HOPE in early detection!

Breast Cancer - waiting time - Advocates for Breast Cancer blogSupport groups are widely available – and absolutely invaluable throughout your journey. Very importantly, being referred to the correct specialist is ultimately the best way to shorten the waiting time for a treatment plan – and pricelessly beneficial to your health!

As a final request from my heart, please always take someone with you to all your consultations.” —  Maryan Haefele (Radiographer)


TAKEAWAY:
Below are three of many places where you can find support – and we’ll be adding a complete list for you later this week! What’s really amazing about the variety of support groups available range from telephonic, to one-on-one sessions, group sessions and even via social media – which means that you can find the kind of support that best fits in with your practical needs and personality.

 

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In the beginning I was afraid

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Combined.pdfDo you have a story to tell? Watch this video to discover just how powerful this initiative is.  Click on this link to submit your photograph and story. We want to hear from you. And – by telling your story, you will be adding your voice to the collective shout in raising the national and international awareness that is needed to shake the truth from the trees: South Africa’s people urgently need an equitable and effective breast health policy!

People Living with Cancer logo

A family history of cancer

2014-10-31 10.18.58By Estelle Botha
Uitenhage

THE QUESTION I ASK IS:

DO YOU THINK LIFE CHANGES AFTER BEING DIAGNOSED WITH ANY FORM OF CANCER?

This is my story of Faith Love and Hope. Without these three I don’t know how I would have handled every situation that came my way in the form of cancer.

The word cancer was never mentioned or heard  of in our family or generations before us. But in the year 1992 the first blow came and the youngest of seven children who was also my twin sister was told she had breast cancer. This shocked the whole family she was only 37 at the time with two children at school. How can this be and why? I think when one does get cancer these are the questions that taunt us.

She had to undergo a complete mastectomy but no treatment. We could not understand this. Two years down the line the cancer had spread to her lungs and she fought a hard battle right to the end. To see her suffer this way was not easy for us as a family. She never got to see her daughter matriculate and son finish school.

Just before her 40th birthday she passed away, struggling to breathe. The night she died, my nephew who had had a brain tumour removed, came out of his coma. He was a young father with twin boys aged 4 and a wife. We all had mixed emotions: both sadness and joy, but all mindful of a sister we had just lost.

My twin’s love for God never wavered and not once did she complain. I realised then that I needed to get my priorities right I went to church but that was all and I thought it was ok.  Greg (my nephew) did not have it easy after that and he battled along, he always had a joke to tell no matter how he felt and in 2001 he too passed away. Greg was the eldest son to my eldest brother.

In 1999 my life took a change and my love for God grew in leaps and bounds and I knew that God had a plan and purpose for me, not knowing from now on the word Cancer would be part of my life. In 2005 my brother-in law and I were both diagnosed with a cancer and sadly he passed away five months later.

When I was told I had cancer in April of 2005 I could not believe it.  Who me? An athlete who ate healthy who did not drink or smoke had competed in three Comrades marathons had a lot of ultra- marathons as well as many smaller races under the belt. Oh boy this was just too much. But surprisingly I accepted it so well due to the fact I knew my Lord and Saviour and that through Him I made a promise that I would fight this battle, not alone but with help of my husband, our son and close friends who kept on praying for me.

One night during this time I called out to God and asked Dear Lord how much more could I take! I just could not handle being sick anymore and as I lay on the cold bathroom floor seeking the coolness of the tiles with nausea, a head that felt like it was in the sun too long and a body that ached I had a vision of the Cross. What an answer from God. I realised at that moment how much my Saviour suffered for me and I realised what a wimp I was, here I am moaning and groaning about being sick and yet He suffered much much more than I would  ever feel or take. I asked God to forgive me for complaining and to help me through this ordeal.

A scripture reading that remains my favourite is “I will never leave you are forsake you”  this verse played a major role in my life after that. In that same year my eldest sister was diagnosed with bladder cancer stage 4. She had just buried her husband and now she was told she now has cancer. This was a lot for her children to take in. The memories I have of her is that she fought this battle with courage and strength: no matter how she felt life went on.

On the day she died we were travelling to East London to say our goodbyes to her as she lying dying in hospital. As we got outside East London I got a call to say she had just passed away. I Cried to God why take her now I was so close in spending a few last minutes with her now she gone. But then I remembered that God had given me time with her two weeks prior this. She always reminded me how naughty we twins were setting mom’s wedding dress alight and almost burning the house down. We got a spanking for this.

My mission in life was to get my family saved by acknowledging Jesus as their Saviour. I knew where I was in my walk with the Lord and I needed to know where they were in their walk with Him. She told me “Stellie I know my God I have accepted Jesus as my Saviour and I am ready to go to a place where there will be no more suffering for me anymore”. She was now the eldest sister to pass away from our family. My three older brothers were also diagnosed with early prostrate cancer.

Now I come to one closer to home … wait for it … my husband Theunis who was diagnosed in 2010 with colon cancer. This not only hit me harder but this time it affected our son as well. It was bad enough that mom had to go through cancer and treatment and now his dad has it. He was a scared and angry young man and overwhelmed by it all. I really questioned God. Why did Theunis have to get this big C? He is the bread winner etc how are we going to cope? Why let him get cancer – a guy that does not wrong anyone? He is always giving to the poor or food to the beggers. This was too much!

Theunis and I met after running our first Comrades Marathon 1978 and we married in 1979. It took me to a whole new level of prayer interceding for my husband and deeper soul searching to fine peace and assurance from God that He is close to those who call upon His name and that in time of troubles He will lift you up on wings of eagles you will soar and not grow weary.

Theunis got through the long operation and he was so fortunate that the doctor could cut away the bad part and re-join the colon. The good news was Theunis did not need a bag. What a God we serve. He had to undergo treatment which meant that he would get chemo and today he is still in remission. Dad Botha was diagnosed with cancer and died in 2011. He too had lost his first wife at an early age to breast cancer when my hubby was only a boy of 10 years. To lose a mother at that age was hard for him.

My story does not stop there. After being in remission a year another blow was dealt to me. I now have bladder cancer. The good news was that all I have to do is have a check-up every three months and  if it’s there surgeon will remove it and that is how it is going to be for the rest of my life.

In 2012  I had to go yet for another procedure. This time the left lung as there were markings and the doctors did not want to take a chance. I came out of it well until two weeks later I started to battle with my breathing. X-rays were done and I was told that the lung had collapsed due to air leakage. My real testing came at this time when no matter what the specialist tried, the lung would not take to the lining. I suffered panic attacks and became depressed. I lost weight. At times I felt that if only I could jump out the window all this would be over. I would cry out of sheer frustration and ask God “what now? Why this on top of it all?”

The problem was that here I was attached to pipes and oxygen and nowhere to run I could not take the pipes out as they were there for a purpose. I was scheduled for another operation so that the specialists could found out which hole was leaking. Can you imagine for a moment lying on a bed in ICU, drips and drains attached, and next to you are all the men and women who have just undergone heart surgery. This is not funny. All you see is monitors beeping and going off then you look at yours to make sure your heart is ok. It’s really nerve raking. The lining of my lung was removed and 6 weeks later the lung had improved and I could go home.

I came home to a house filled with close friends and brothers and sisters in Christ. What a surprise. This year both my hubby and myself did the Relay for Life. We were the only two in the team we walked and ran throughout the night to come 4th overall out of all the teams that ran that night. Another feather in our cap.

It is with Faith Hope and Trust  in God that has taken us through all this knowing that He is near to those who call upon His name. He promises us in His word that He will never leave us or forsake us for He is with us in all situations.

When I look back through these last nine years I thank God for His Faithfulness, Love and Mercy that through it all I have become a stronger person relying on Him for inner strength.

Through all this I continue to be a candle in the dark by giving hope to newly diagnosed breast cancer men and women by encouraging them to take one day at a time and to trust in God no matter what life throws at you. To Love God with your whole heart , with all your mind and with all your soul. Draw near to God and He will draw near to you. I give Him all the Praise and Glory.

The question I asked you all earlier was “do you think life changes after cancer”?

I would say it does, as one sees life differently and the things that use to be our first priority are no longer first. I would say in my life, God comes first and
the rest can follow.

 

 

 

 

 

 

My story: Pearl Makhalemele

Pearl Makhalemele shares her journey with cancer